Paul Provenza, the mocking of a child with neurofibromatosis, and the need for civil discourse

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YES, i'm involved in this. my hat is off to ron and marina who brought this to people's attention.

i do not know mr. provenza or his "entourage" but i do know when someone used a sick child with a genetic disease and a deformity for a cheap laugh.

ron and marina have gotten a ton of grief over the article.
some of the postings from mr. provenza's friends are just sad and sickening. i am more angry than i have been in YEARS.

i can and have, made fun of myself over this disease and the effects on me. i can, i have it, but this man made fun of a CHILD. he used her photo for a cheap little shock and awe laugh.

they say it wasn't public but when it's posted for 5 thousand of your closest "friends" to view...!

i have facebook friends that have this disease. some of them have children with it.

god, i feel so bad for them.

and 1 of this man's friends said we just need to, "toughen up"

he doesn't know what it means to be tough. to HAVE to BE tough.